Welcome to the 5th part of the OpenAPS series! I have been using my OpenAPS for 2 months now, so here are some things that I wish I had known before starting my journey with the system:
Using a metal case is not the best idea for a few reasons:
The rig overheats pretty easily in there
I would routinely take the case out of my pocket or bag and feel how warm it was from the outside. I would take the lid off and it would rest, lid off to cool. Who knows how often it was steaming away when I wasn’t paying attention.
The reception is significantly worse than plastic
When I swapped to the 3D printed case, I noticed significantly improved reception and I have since been told that the rig is not able to communicate through metal and all of the communication was going through that small plastic window. It’s too bad since it was such a snazzy looking case.
You’re bomb proof
After about a week of using my OpenAPS with a fairly regular and low carb eating regimen, I was stoked on the results. I was bomb proof! So many of the flukes that caused spikes and dips that I wasn’t able to identify before were gone! Poof! If you want to know why I’ve written so many posts about OpenAPS it is because I have friends who have been living with Type 1 for 20 years who haven’t heard about this little miracle!
BUT. All good things must come to an end. About 3 weeks in, I internalized the whole ‘bomb proof’ thing and stopped bolusing 20 minutes early and counting my carbs as exactly. OpenAPS is not a guardian angel, it cannot protect you from yourself. So long story short, it is infinitely helpful when you make choices that limit spiking and dipping, but you’re not bomb proof.
Withdrawal from the OpenAPS
I had a CGM transmitter fail on me at the 1.5 month mark. It was the worst. I not only lost CGM capabilities but also the benefits of OpenAPS. My dawn phenomenon was a gong show. I immediately uploaded my data and changed 3 basal rates. I felt pretty gross too. I was used to being below 8.5 mmol/L all the time and now I was fluctuating around 13 mmol/L. If I was reading this last bit a year ago I’d be rolling my eyes big time. I guess the price to pay for better control is a more sensitive body!